Patient Focus
October 24, 2025
Looking Beyond the Clinic: Putting Patients at the Center of Holistic Care in Transthyreti ...
Enhancing understanding of this life-threatening disease and ensuring that care reflects the realities of those living with it are vital goals shared across the
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October 20, 2025
Alnylam’s Commitment to Health Literacy for All
As a patient-centric organization, Alnylam is fully committed to promoting the principles of health literacy as an integral part of our innovation and culture.
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September 6, 2023
First Consensus Recommendations for Holistic Care of People Living With Hereditary ATTR Am ...
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February 28, 2023
The Importance of Self-Advocacy: Supporting Patients and Caregivers in Their Rare Disease ...
Rare Disease Day unites the community to spread awareness and support the millions of people worldwide living with with a rare disease.
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May 9, 2022
Building a Collaborative Framework for Facilitating Patient Access to Innovative Therapies
Alnylam worked with leading European economists and other healthcare experts to develop what we call the Value-Based Negotiation Framework (VBNF) to help...
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April 2, 2022
The Making of Two of Me: Living with Porphyria
Cynthia Lowen, Emmy-nominated filmmaker, talks about the making of Two of Me: Living with Porphyria.
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February 28, 2022
Supporting Health Equity for All Through Leadership, Action and Partnership
"Health equity" means that everyone has a fair and just opportunity to live the healthiest life possible, regardless of who they are, where they live or how...
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December 21, 2021
Alnylam Publishes 2021 Patient Access Philosophy Report
Alnylam has published its 2021 Patient Access Philosophy Report detailing its actions as a company to provide access to its medicines for those who may...
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December 16, 2021
Guest Post: Creating Connections to Support the hATTR Amyloidosis Community
Susanne Berglund is the Chancellor of FAMY Norrbotten, an amyloidosis patient advocacy group reflects on the importance of making connections to support...
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September 6, 2021
Co-Creating with Patients, for Patients: Addressing Unmet Needs in Conversations about AT ...
Collaborating with patient organizations and patients is an essential part of our efforts to support people living with a complex rare disease like...
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