Patient Focus

January 9, 2020 Expressing the Puzzling Challenges of hATTR Amyloidosis Through Art We recently spoke with Peggy and her life partner Dan, who is living with hATTR amyloidosis, about their submission, At the Coffee Shop.  Read More ›
December 12, 2019 Building Bridges to Support Patients’ Care Supporting patients and their caregivers by facilitating access to innovative treatments is at the core of our Patient Access Philosophy. Read More ›
December 4, 2019 Guest Post: Partnering to Educate the African American Community About hATTR Amyloidosis One of our areas of focus at Black Health Matters is education about the importance of knowing one’s family health history. Read More ›
September 17, 2019 +MyFamily Program with 23andMe Aims to Increase Awareness of TTR-Related Hereditary Amyloi ... hATTR amyloidosis is a potentially devastating and life-threatening condition that may affect families, generation after generation. Read More ›
September 14, 2019 "Beyond the Visible" Art Exhibit Raises Awareness of Acute Hepatic Porphyria in Italy This past weekend, "Beyond the Visible," a first of its kind exhibition of original works of art created by a group of graphic design and art students... Read More ›
September 9, 2019 Alnylam's Patient Access Philosophy - Our Progress Nearly two years ago – before we launched our first product – we made a commitment to strive toward broad patient access to our medicines. In our view... Read More ›
August 8, 2019 Call for Entries: Deadline Extended - Submit Your Original Art Depicting Life with hATTR A ... “The Art of Living with hATTR Amyloidosis” is a new initiative inviting members of the hereditary ATTR (hATTR) amyloidosis community – including patients... Read More ›
June 24, 2019 Alnylam Honored by NORD with a Rare Impact Award Alnylam Honored by NORD with a Rare Impact Award for the development and approval of ONPATTRO (patisiran). Read More ›
June 21, 2019 Alnylam Launches PH1 of a Kind - An Animated Video Series for Kids with PH1 Yesterday, at the OHF International Hyperoxaluria Workshop in Boston, Alnylam previewed PH1 of a Kind, a new animated video series for children about living... Read More ›
May 12, 2019 Ania (UK) - Living with Acute Intermittent Porphyria (AIP) Ania from the UK is living with acute intermittent porphyria (AIP), a type of acute hepatic porphyria (AHP). In this video, she shares her story and thoughts... Read More ›
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