Patient Focus
January 9, 2020
Expressing the Puzzling Challenges of hATTR Amyloidosis Through Art
We recently spoke with Peggy and her life partner Dan, who is living with hATTR amyloidosis, about their submission, At the Coffee Shop.
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December 12, 2019
Building Bridges to Support Patients’ Care
Supporting patients and their caregivers by facilitating access to innovative treatments is at the core of our Patient Access Philosophy.
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December 4, 2019
Guest Post: Partnering to Educate the African American Community About hATTR Amyloidosis
One of our areas of focus at Black Health Matters is education about the importance of knowing one’s family health history.
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September 17, 2019
+MyFamily Program with 23andMe Aims to Increase Awareness of TTR-Related Hereditary Amyloi ...
hATTR amyloidosis is a potentially devastating and life-threatening condition that may affect families, generation after generation.
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September 14, 2019
"Beyond the Visible" Art Exhibit Raises Awareness of Acute Hepatic Porphyria in Italy
This past weekend, "Beyond the Visible," a first of its kind exhibition of original works of art created by a group of graphic design and art students...
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September 9, 2019
Alnylam's Patient Access Philosophy - Our Progress
Nearly two years ago – before we launched our first product – we made a commitment to strive toward broad patient access to our medicines. In our view...
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August 8, 2019
Call for Entries: Deadline Extended - Submit Your Original Art Depicting Life with hATTR A ...
“The Art of Living with hATTR Amyloidosis” is a new initiative inviting members of the hereditary ATTR (hATTR) amyloidosis community – including patients...
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June 24, 2019
Alnylam Honored by NORD with a Rare Impact Award
Alnylam Honored by NORD with a Rare Impact Award for the development and approval of ONPATTRO (patisiran).
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June 21, 2019
Alnylam Launches PH1 of a Kind - An Animated Video Series for Kids with PH1
Yesterday, at the OHF International Hyperoxaluria Workshop in Boston, Alnylam previewed PH1 of a Kind, a new animated video series for children about living...
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May 12, 2019
Ania (UK) - Living with Acute Intermittent Porphyria (AIP)
Ania from the UK is living with acute intermittent porphyria (AIP), a type of acute hepatic porphyria (AHP). In this video, she shares her story and thoughts...
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