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Patient Focus

Patient focus September 14, 2020 Navigating AHP and Pain During a Pandemic As the COVID-19 pandemic continues to have a significant impact on people and communities around the world, it poses unique challenges for people living with... Read More ›
KHI Article August 3, 2020 How to Evaluate a Medicine for the Treatment of an Ultra-rare Disease Such as PH1 For a new medicine to become available, it needs to undergo stringent testing in clinical trials to evaluate its safety and, importantly, its efficacy... Read More ›
Patient focus June 2, 2020 Announcing the 2019-2020 Advocacy for Impact Grant Recipients The Alnylam 2019-2020 Advocacy for Impact grant recipients come from five countries across three continents, and will receive grants totaling USD $270,000.00... Read More ›
Winding Road May 6, 2020 Navigating the Winding Road to Drug Approvals Learn about the winding road and key members involved in getting a new drug approved. Read More ›
Patient focus March 30, 2020 Alnylam's Response to COVID-19 Learn more about Alnylam's response to the COVID-19 pandemic. Read More ›
Patient focus February 25, 2020 Advocacy for Impact Grants: Updates from the Field Learn about how patient organizations who received 2018-2019 Alnylam Advocacy for Impact Grants have been putting those funds to work. Read More ›
Patient focus January 9, 2020 Expressing the Puzzling Challenges of hATTR Amyloidosis Through Art We recently spoke with Peggy and her life partner Dan, who is living with hATTR amyloidosis, about their submission, At the Coffee Shop.  Read More ›
Patient focus December 12, 2019 Building Bridges to Support Patients’ Care Supporting patients and their caregivers by facilitating access to innovative treatments is at the core of our Patient Access Philosophy. Read More ›
Patient focus December 4, 2019 Guest Post: Partnering to Educate the African American Community About hATTR Amyloidosis One of our areas of focus at Black Health Matters is education about the importance of knowing one’s family health history. Read More ›
Patient focus September 17, 2019 +MyFamily Program with 23andMe Aims to Increase Awareness of TTR-Related Hereditary Amyloi ... hATTR amyloidosis is a potentially devastating and life-threatening condition that may affect families, generation after generation. Read More ›
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