Banner sm 16

Patient Focus

ICPP Art Exhinit September 14, 2019 "Beyond the Visible" Art Exhibit Raises Awareness of Acute Hepatic Porphyria in Italy This past weekend, "Beyond the Visible," a first of its kind exhibition of original works of art created by a group of graphic design and art students... Read More ›
PAP Report px v1 Option September 9, 2019 Alnylam's Patient Access Philosophy - Our Progress Nearly two years ago – before we launched our first product – we made a commitment to strive toward broad patient access to our medicines. In our view... Read More ›
Art of Living with Logo August 8, 2019 Call for Entries: Deadline Extended - Submit Your Original Art Depicting Life with hATTR A ... “The Art of Living with hATTR Amyloidosis” is a new initiative inviting members of the hereditary ATTR (hATTR) amyloidosis community – including patients... Read More ›
NORD Rare Impact June 24, 2019 Alnylam Honored by NORD with a Rare Impact Award Alnylam Honored by NORD with a Rare Impact Award for the development and approval of ONPATTRO (patisiran). Read More ›
PH1 of a Kind June 21, 2019 Alnylam Launches PH1 of a Kind - An Animated Video Series for Kids with PH1 Yesterday, at the OHF International Hyperoxaluria Workshop in Boston, Alnylam previewed PH1 of a Kind, a new animated video series for children about living... Read More ›
Ania May 12, 2019 Ania (UK) - Living with Acute Intermittent Porphyria (AIP) Ania from the UK is living with acute intermittent porphyria (AIP), a type of acute hepatic porphyria (AHP). In this video, she shares her story and thoughts... Read More ›
Claire May 1, 2019 The Skinner Family - Living with Primary Hyperoxaluria Type 1 Three of the four Skinner children have been diagnosed with primary hyperoxaluria type 1 (PH1). Learn more about their story in this video. Read More ›
February 28, 2019 Meet the 2018 Advocacy for Impact Grants Recipients We are very pleased to announce the 2018-19 Advocacy for Impact Grants recipients and share more information about their initiatives. Advocacy for Impact is... Read More ›
Muriel banner June 19, 2018 Guest Post: Finding Hope in a Potential New Class of Medicines Amyloidosis first entered my husband’s life and my life in the mid-1990s, when we began to care for my uncle who had amyloidosis, a time I call the “dark ages. Read More ›
Two people standing together in a historic city square with stone architecture in the background June 19, 2018 Guest Post: The Heroes Among Us For many of us, it’s unimaginable to think of a daily life filled with intractable pain. It’s also hard to imagine caring for someone in pain of that... Read More ›
Subscribe to Patient Focus