Patient Focus

First Consensus Recommendations for Holistic Care of People Living With Hereditary ATTR Amyloidosis

TLane — Wed, 06 Sep 2023 15:05:26 +0000

First Consensus Recommendations for Holistic Care of People Living With Hereditary ATTR Amyloidosis TLane Wed, 09/06/2023 - 15:05

Alnylam — Tue, 28 Feb 2023 20:19:40 +0000

The Importance of Self-Advocacy: Supporting Patients and Caregivers in Their Rare Disease Journey Alnylam Tue, 02/28/2023 - 20:19

Anonymous — Mon, 09 May 2022 19:02:58 +0000

Building a Collaborative Framework for Facilitating Patient Access to Innovative Therapies Anonymous (not verified) Mon, 05/09/2022 - 19:02

Alnylam — Sat, 02 Apr 2022 16:33:19 +0000

The Making of Two of Me: Living with Porphyria Alnylam Sat, 04/02/2022 - 16:33

Alnylam — Mon, 28 Feb 2022 16:12:52 +0000

Supporting Health Equity for All Through Leadership, Action and Partnership Alnylam Mon, 02/28/2022 - 16:12

Alnylam — Tue, 21 Dec 2021 13:50:11 +0000

Alnylam Publishes 2021 Patient Access Philosophy Report Alnylam Tue, 12/21/2021 - 13:50

sberglund — Thu, 16 Dec 2021 13:54:51 +0000

Guest Post: Creating Connections to Support the hATTR Amyloidosis Community sberglund Thu, 12/16/2021 - 13:54

TLane — Mon, 06 Sep 2021 17:53:08 +0000

Co-Creating with Patients, for Patients: Addressing Unmet Needs in Conversations about ATTR Amyloidosis TLane Mon, 09/06/2021 - 17:53

David — Sat, 04 Sep 2021 14:36:51 +0000

Guest Post: Tracking My hATTR Amyloidosis Symptoms to Take Back Control David Sat, 09/04/2021 - 14:36

lburton — Thu, 15 Apr 2021 17:29:38 +0000

Guest Post: Partnering to Make a Positive Difference for People with Kidney Disease lburton Thu, 04/15/2021 - 17:29