Patient Focus https://news.alnylam.com/ en First Consensus Recommendations for Holistic Care of People Living With Hereditary ATTR Amyloidosis https://news.alnylam.com/patient-focus/articles/first-consensus-recommendations-holistic-care-people-living-hereditary-attr <span property="schema:name" class="field field--name-title field--type-string field--label-hidden">First Consensus Recommendations for Holistic Care of People Living With Hereditary ATTR Amyloidosis</span> <span rel="schema:author" class="field field--name-uid field--type-entity-reference field--label-hidden"><a title="View user profile." href="/author/tlane" lang="" about="/author/tlane" typeof="schema:Person" property="schema:name" datatype="" class="username">TLane</a></span> <span property="schema:dateCreated" content="2023-09-06T15:05:26+00:00" class="field field--name-created field--type-created field--label-hidden">Wed, 09/06/2023 - 15:05</span> Wed, 06 Sep 2023 15:05:26 +0000 TLane 155 at https://news.alnylam.com The Importance of Self-Advocacy: Supporting Patients and Caregivers in Their Rare Disease Journey https://news.alnylam.com/patient-focus/articles/importance-self-advocacy-supporting-patients-and-caregivers-their-rare <span property="schema:name" class="field field--name-title field--type-string field--label-hidden">The Importance of Self-Advocacy: Supporting Patients and Caregivers in Their Rare Disease Journey</span> <span rel="schema:author" class="field field--name-uid field--type-entity-reference field--label-hidden"><a title="View user profile." href="/author/alnylam" lang="" about="/author/alnylam" typeof="schema:Person" property="schema:name" datatype="" class="username">Alnylam</a></span> <span property="schema:dateCreated" content="2023-02-28T20:19:40+00:00" class="field field--name-created field--type-created field--label-hidden">Tue, 02/28/2023 - 20:19</span> Tue, 28 Feb 2023 20:19:40 +0000 Alnylam 150 at https://news.alnylam.com Building a Collaborative Framework for Facilitating Patient Access to Innovative Therapies https://news.alnylam.com/patient-focus/articles/building-collaborative-framework-facilitating-patient-access-innovative <span property="schema:name" class="field field--name-title field--type-string field--label-hidden">Building a Collaborative Framework for Facilitating Patient Access to Innovative Therapies</span> <span rel="schema:author" class="field field--name-uid field--type-entity-reference field--label-hidden"><a title="View user profile." href="/author/alnylam" lang="" about="/author/alnylam" typeof="schema:Person" property="schema:name" datatype="" class="username">Alnylam</a></span> <span property="schema:dateCreated" content="2022-05-09T19:02:58+00:00" class="field field--name-created field--type-created field--label-hidden">Mon, 05/09/2022 - 19:02</span> Mon, 09 May 2022 19:02:58 +0000 Alnylam 125 at https://news.alnylam.com The Making of Two of Me: Living with Porphyria https://news.alnylam.com/patient-focus/articles/making-two-me-living-porphyria <span property="schema:name" class="field field--name-title field--type-string field--label-hidden">The Making of Two of Me: Living with Porphyria</span> <span rel="schema:author" class="field field--name-uid field--type-entity-reference field--label-hidden"><a title="View user profile." href="/author/alnylam" lang="" about="/author/alnylam" typeof="schema:Person" property="schema:name" datatype="" class="username">Alnylam</a></span> <span property="schema:dateCreated" content="2022-04-02T16:33:19+00:00" class="field field--name-created field--type-created field--label-hidden">Sat, 04/02/2022 - 16:33</span> Sat, 02 Apr 2022 16:33:19 +0000 Alnylam 118 at https://news.alnylam.com https://news.alnylam.com/patient-focus/articles/making-two-me-living-porphyria#comments Supporting Health Equity for All Through Leadership, Action and Partnership https://news.alnylam.com/patient-focus/articles/supporting-health-equity-all-through-leadership-action-and-partnership <span property="schema:name" class="field field--name-title field--type-string field--label-hidden">Supporting Health Equity for All Through Leadership, Action and Partnership</span> <span rel="schema:author" class="field field--name-uid field--type-entity-reference field--label-hidden"><a title="View user profile." href="/author/alnylam" lang="" about="/author/alnylam" typeof="schema:Person" property="schema:name" datatype="" class="username">Alnylam</a></span> <span property="schema:dateCreated" content="2022-02-28T16:12:52+00:00" class="field field--name-created field--type-created field--label-hidden">Mon, 02/28/2022 - 16:12</span> Mon, 28 Feb 2022 16:12:52 +0000 Alnylam 117 at https://news.alnylam.com Alnylam Publishes 2021 Patient Access Philosophy Report https://news.alnylam.com/patient-focus/articles/alnylam-publishes-2021-patient-access-philosophy-report <span property="schema:name" class="field field--name-title field--type-string field--label-hidden">Alnylam Publishes 2021 Patient Access Philosophy Report</span> <span rel="schema:author" class="field field--name-uid field--type-entity-reference field--label-hidden"><a title="View user profile." href="/author/alnylam" lang="" about="/author/alnylam" typeof="schema:Person" property="schema:name" datatype="" class="username">Alnylam</a></span> <span property="schema:dateCreated" content="2021-12-21T13:50:11+00:00" class="field field--name-created field--type-created field--label-hidden">Tue, 12/21/2021 - 13:50</span> Tue, 21 Dec 2021 13:50:11 +0000 Alnylam 122 at https://news.alnylam.com https://news.alnylam.com/patient-focus/articles/alnylam-publishes-2021-patient-access-philosophy-report#comments Guest Post: Creating Connections to Support the hATTR Amyloidosis Community https://news.alnylam.com/patient-focus/articles/guest-post-creating-connections-support-hattr-amyloidosis-community <span property="schema:name" class="field field--name-title field--type-string field--label-hidden">Guest Post: Creating Connections to Support the hATTR Amyloidosis Community</span> <span rel="schema:author" class="field field--name-uid field--type-entity-reference field--label-hidden"><a title="View user profile." href="/author/sberglund" lang="" about="/author/sberglund" typeof="schema:Person" property="schema:name" datatype="" class="username">sberglund</a></span> <span property="schema:dateCreated" content="2021-12-16T13:54:51+00:00" class="field field--name-created field--type-created field--label-hidden">Thu, 12/16/2021 - 13:54</span> Thu, 16 Dec 2021 13:54:51 +0000 sberglund 113 at https://news.alnylam.com Co-Creating with Patients, for Patients: Addressing Unmet Needs in Conversations about ATTR Amyloidosis https://news.alnylam.com/patient-focus/articles/co-creating-patients-patients-addressing-unmet-needs-conversations-about <span property="schema:name" class="field field--name-title field--type-string field--label-hidden">Co-Creating with Patients, for Patients: Addressing Unmet Needs in Conversations about ATTR Amyloidosis</span> <span rel="schema:author" class="field field--name-uid field--type-entity-reference field--label-hidden"><a title="View user profile." href="/author/tlane" lang="" about="/author/tlane" typeof="schema:Person" property="schema:name" datatype="" class="username">TLane</a></span> <span property="schema:dateCreated" content="2021-09-06T17:53:08+00:00" class="field field--name-created field--type-created field--label-hidden">Mon, 09/06/2021 - 17:53</span> Mon, 06 Sep 2021 17:53:08 +0000 TLane 110 at https://news.alnylam.com Guest Post: Tracking My hATTR Amyloidosis Symptoms to Take Back Control https://news.alnylam.com/patient-focus/articles/guest-post-tracking-my-hattr-amyloidosis-symptoms-take-back-control <span property="schema:name" class="field field--name-title field--type-string field--label-hidden">Guest Post: Tracking My hATTR Amyloidosis Symptoms to Take Back Control</span> <span rel="schema:author" class="field field--name-uid field--type-entity-reference field--label-hidden"><a title="View user profile." href="/author/david" lang="" about="/author/david" typeof="schema:Person" property="schema:name" datatype="" class="username">David</a></span> <span property="schema:dateCreated" content="2021-09-04T14:36:51+00:00" class="field field--name-created field--type-created field--label-hidden">Sat, 09/04/2021 - 14:36</span> Sat, 04 Sep 2021 14:36:51 +0000 David 109 at https://news.alnylam.com Guest Post: Partnering to Make a Positive Difference for People with Kidney Disease https://news.alnylam.com/patient-focus/articles/guest-post-partnering-make-positive-difference-people-kidney-disease <span property="schema:name" class="field field--name-title field--type-string field--label-hidden">Guest Post: Partnering to Make a Positive Difference for People with Kidney Disease </span> <span rel="schema:author" class="field field--name-uid field--type-entity-reference field--label-hidden"><span lang="" about="/author/lburton" typeof="schema:Person" property="schema:name" datatype="">lburton</span></span> <span property="schema:dateCreated" content="2021-04-15T17:29:38+00:00" class="field field--name-created field--type-created field--label-hidden">Thu, 04/15/2021 - 17:29</span> Thu, 15 Apr 2021 17:29:38 +0000 lburton 101 at https://news.alnylam.com