Patient Advocacy
September 6, 2023
First Consensus Recommendations for Holistic Care of People Living With Hereditary ATTR Am ...
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February 28, 2023
The Importance of Self-Advocacy: Supporting Patients and Caregivers in Their Rare Disease ...
Rare Disease Day unites the community to spread awareness and support the millions of people worldwide living with with a rare disease.
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December 16, 2021
Guest Post: Creating Connections to Support the hATTR Amyloidosis Community
Susanne Berglund is the Chancellor of FAMY Norrbotten, an amyloidosis patient advocacy group reflects on the importance of making connections to support...
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April 15, 2021
Guest Post: Partnering to Make a Positive Difference for People with Kidney Disease
LaVarne Burton, President and CEO of the American Kidney Fund talks about the importance of partnerships...
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February 23, 2021
Rare Disease Day 2021: Rare Is Many. Rare Is Strong. Rare Is Proud.
While some aspects of living with a rare disease are similar, there is no singular shared experience. There is, however, a common sentiment among those...
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December 7, 2020
Alnylam Releases 2nd Annual Patient Access Philosophy Report
The 2020 Alnylam Patient Access Philosophy Report details Alnylam's progress against key metrics related to patient access to its innovative RNAi therapeutics.
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October 1, 2020
A New European Biotech Social Pact
The European Pact builds on Alnylam’s own pledge, encouraging biotech companies to be a force for good in partnering with European authorities, citizens and...
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August 3, 2020
How to Evaluate a Medicine for the Treatment of an Ultra-rare Disease Such as PH1
For a new medicine to become available, it needs to undergo stringent testing in clinical trials to evaluate its safety and, importantly, its efficacy...
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June 2, 2020
Announcing the 2019-2020 Advocacy for Impact Grant Recipients
The Alnylam 2019-2020 Advocacy for Impact grant recipients come from five countries across three continents, and will receive grants totaling USD $270,000.00...
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May 6, 2020
Navigating the Winding Road to Drug Approvals
Learn about the winding road and key members involved in getting a new drug approved.
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