Patient Advocacy

February 25, 2020 Advocacy for Impact Grants: Updates from the Field Learn about how patient organizations who received 2018-2019 Alnylam Advocacy for Impact Grants have been putting those funds to work. Read More ›
January 9, 2020 Expressing the Puzzling Challenges of hATTR Amyloidosis Through Art We recently spoke with Peggy and her life partner Dan, who is living with hATTR amyloidosis, about their submission, At the Coffee Shop.  Read More ›
December 4, 2019 Guest Post: Partnering to Educate the African American Community About hATTR Amyloidosis One of our areas of focus at Black Health Matters is education about the importance of knowing one’s family health history. Read More ›
September 14, 2019 "Beyond the Visible" Art Exhibit Raises Awareness of Acute Hepatic Porphyria in Italy This past weekend, "Beyond the Visible," a first of its kind exhibition of original works of art created by a group of graphic design and art students... Read More ›
August 8, 2019 Call for Entries: Deadline Extended - Submit Your Original Art Depicting Life with hATTR A ... “The Art of Living with hATTR Amyloidosis” is a new initiative inviting members of the hereditary ATTR (hATTR) amyloidosis community – including patients... Read More ›
June 24, 2019 Alnylam Honored by NORD with a Rare Impact Award Alnylam Honored by NORD with a Rare Impact Award for the development and approval of ONPATTRO (patisiran). Read More ›
June 21, 2019 Alnylam Launches PH1 of a Kind - An Animated Video Series for Kids with PH1 Yesterday, at the OHF International Hyperoxaluria Workshop in Boston, Alnylam previewed PH1 of a Kind, a new animated video series for children about living... Read More ›
February 28, 2019 Meet the 2018 Advocacy for Impact Grants Recipients We are very pleased to announce the 2018-19 Advocacy for Impact Grants recipients and share more information about their initiatives. Advocacy for Impact is... Read More ›
June 19, 2018 Guest Post: Finding Hope in a Potential New Class of Medicines Amyloidosis first entered my husband’s life and my life in the mid-1990s, when we began to care for my uncle who had amyloidosis, a time I call the “dark ages. Read More ›
June 19, 2018 Guest Post: The Heroes Among Us For many of us, it’s unimaginable to think of a daily life filled with intractable pain. It’s also hard to imagine caring for someone in pain of that... Read More ›
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