Patient Advocacy
February 25, 2020
Advocacy for Impact Grants: Updates from the Field
Learn about how patient organizations who received 2018-2019 Alnylam Advocacy for Impact Grants have been putting those funds to work.
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January 9, 2020
Expressing the Puzzling Challenges of hATTR Amyloidosis Through Art
We recently spoke with Peggy and her life partner Dan, who is living with hATTR amyloidosis, about their submission, At the Coffee Shop.
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December 4, 2019
Guest Post: Partnering to Educate the African American Community About hATTR Amyloidosis
One of our areas of focus at Black Health Matters is education about the importance of knowing one’s family health history.
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September 14, 2019
"Beyond the Visible" Art Exhibit Raises Awareness of Acute Hepatic Porphyria in Italy
This past weekend, "Beyond the Visible," a first of its kind exhibition of original works of art created by a group of graphic design and art students...
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August 8, 2019
Call for Entries: Deadline Extended - Submit Your Original Art Depicting Life with hATTR A ...
“The Art of Living with hATTR Amyloidosis” is a new initiative inviting members of the hereditary ATTR (hATTR) amyloidosis community – including patients...
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June 24, 2019
Alnylam Honored by NORD with a Rare Impact Award
Alnylam Honored by NORD with a Rare Impact Award for the development and approval of ONPATTRO (patisiran).
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June 21, 2019
Alnylam Launches PH1 of a Kind - An Animated Video Series for Kids with PH1
Yesterday, at the OHF International Hyperoxaluria Workshop in Boston, Alnylam previewed PH1 of a Kind, a new animated video series for children about living...
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June 19, 2018
Guest Post: Finding Hope in a Potential New Class of Medicines
Amyloidosis first entered my husband’s life and my life in the mid-1990s, when we began to care for my uncle who had amyloidosis, a time I call the “dark ages.
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June 19, 2018
Guest Post: The Heroes Among Us
For many of us, it’s unimaginable to think of a daily life filled with intractable pain. It’s also hard to imagine caring for someone in pain of that...
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