Patient Advocacy

First Consensus Recommendations for Holistic Care of People Living With Hereditary ATTR Amyloidosis

TLane — Wed, 06 Sep 2023 15:05:26 +0000

First Consensus Recommendations for Holistic Care of People Living With Hereditary ATTR Amyloidosis TLane Wed, 09/06/2023 - 15:05

Alnylam — Tue, 28 Feb 2023 20:19:40 +0000

The Importance of Self-Advocacy: Supporting Patients and Caregivers in Their Rare Disease Journey Alnylam Tue, 02/28/2023 - 20:19

sberglund — Thu, 16 Dec 2021 13:54:51 +0000

Guest Post: Creating Connections to Support the hATTR Amyloidosis Community sberglund Thu, 12/16/2021 - 13:54

lburton — Thu, 15 Apr 2021 17:29:38 +0000

Guest Post: Partnering to Make a Positive Difference for People with Kidney Disease lburton Thu, 04/15/2021 - 17:29

Alnylam — Tue, 23 Feb 2021 02:27:37 +0000

Rare Disease Day 2021: Rare Is Many. Rare Is Strong. Rare Is Proud. Alnylam Tue, 02/23/2021 - 02:27

Alnylam — Mon, 07 Dec 2020 07:00:15 +0000

Alnylam Releases 2nd Annual Patient Access Philosophy Report Alnylam Mon, 12/07/2020 - 07:00

Alnylam — Thu, 01 Oct 2020 20:17:21 +0000

A New European Biotech Social Pact Alnylam Thu, 10/01/2020 - 20:17

Alnylam — Mon, 03 Aug 2020 19:18:42 +0000

How to Evaluate a Medicine for the Treatment of an Ultra-rare Disease Such as PH1 Alnylam Mon, 08/03/2020 - 19:18

Alnylam — Tue, 02 Jun 2020 05:22:35 +0000

Announcing the 2019-2020 Advocacy for Impact Grant Recipients Alnylam Tue, 06/02/2020 - 05:22

Alnylam — Wed, 06 May 2020 14:11:38 +0000

Navigating the Winding Road to Drug Approvals Alnylam Wed, 05/06/2020 - 14:11