Primary Hyperoxaluria Type 1

April 15, 2021 Guest Post: Partnering to Make a Positive Difference for People with Kidney Disease LaVarne Burton, President and CEO of the American Kidney Fund talks about the importance of partnerships... Read More ›
March 2, 2021 When Are Kidney Stones a Red Flag? According to some estimates, every 1 in 10 adults in the U.S. experiences a kidney stone, suggesting that kidney stones can be rather prevalent. But when are... Read More ›
August 3, 2020 How to Evaluate a Medicine for the Treatment of an Ultra-rare Disease Such as PH1 For a new medicine to become available, it needs to undergo stringent testing in clinical trials to evaluate its safety and, importantly, its efficacy... Read More ›
June 21, 2019 Alnylam Launches PH1 of a Kind - An Animated Video Series for Kids with PH1 Yesterday, at the OHF International Hyperoxaluria Workshop in Boston, Alnylam previewed PH1 of a Kind, a new animated video series for children about living... Read More ›
May 1, 2019 The Skinner Family - Living with Primary Hyperoxaluria Type 1 Three of the four Skinner children have been diagnosed with primary hyperoxaluria type 1 (PH1). Learn more about their story in this video. Read More ›
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