Primary Hyperoxaluria Type 1
April 15, 2021
Guest Post: Partnering to Make a Positive Difference for People with Kidney Disease
LaVarne Burton, President and CEO of the American Kidney Fund talks about the importance of partnerships...
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March 2, 2021
When Are Kidney Stones a Red Flag?
According to some estimates, every 1 in 10 adults in the U.S. experiences a kidney stone, suggesting that kidney stones can be rather prevalent. But when are...
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August 3, 2020
How to Evaluate a Medicine for the Treatment of an Ultra-rare Disease Such as PH1
For a new medicine to become available, it needs to undergo stringent testing in clinical trials to evaluate its safety and, importantly, its efficacy...
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June 21, 2019
Alnylam Launches PH1 of a Kind - An Animated Video Series for Kids with PH1
Yesterday, at the OHF International Hyperoxaluria Workshop in Boston, Alnylam previewed PH1 of a Kind, a new animated video series for children about living...
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May 1, 2019
The Skinner Family - Living with Primary Hyperoxaluria Type 1
Three of the four Skinner children have been diagnosed with primary hyperoxaluria type 1 (PH1). Learn more about their story in this video.
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