Guest Post
December 16, 2021
Guest Post: Creating Connections to Support the hATTR Amyloidosis Community
Susanne Berglund is the Chancellor of FAMY Norrbotten, an amyloidosis patient advocacy group reflects on the importance of making connections to support...
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April 15, 2021
Guest Post: Partnering to Make a Positive Difference for People with Kidney Disease
LaVarne Burton, President and CEO of the American Kidney Fund talks about the importance of partnerships...
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December 4, 2019
Guest Post: Partnering to Educate the African American Community About hATTR Amyloidosis
One of our areas of focus at Black Health Matters is education about the importance of knowing one’s family health history.
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June 19, 2018
Guest Post: Finding Hope in a Potential New Class of Medicines
Amyloidosis first entered my husband’s life and my life in the mid-1990s, when we began to care for my uncle who had amyloidosis, a time I call the “dark ages.
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June 19, 2018
Guest Post: The Heroes Among Us
For many of us, it’s unimaginable to think of a daily life filled with intractable pain. It’s also hard to imagine caring for someone in pain of that...
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February 28, 2018
A Note from Nicole Boice of Global Genes: Hope Is on the Horizon
On this Rare Disease Day—and as is the case each year on February 28—I’m reminded of why I founded Global Genes nearly a decade ago. At that time, I was just...
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