Porphyria

May 12, 2019 Ania (UK) - Living with Acute Intermittent Porphyria (AIP) Ania from the UK is living with acute intermittent porphyria (AIP), a type of acute hepatic porphyria (AHP). In this video, she shares her story and thoughts... Read More ›
June 19, 2018 Guest Post: The Heroes Among Us For many of us, it’s unimaginable to think of a daily life filled with intractable pain. It’s also hard to imagine caring for someone in pain of that... Read More ›
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