PH1
February 28, 2023
The Importance of Self-Advocacy: Supporting Patients and Caregivers in Their Rare Disease ...
Rare Disease Day unites the community to spread awareness and support the millions of people worldwide living with with a rare disease.
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May 1, 2019
The Skinner Family - Living with Primary Hyperoxaluria Type 1
Three of the four Skinner children have been diagnosed with primary hyperoxaluria type 1 (PH1). Learn more about their story in this video.
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