Amyloidosis
October 24, 2025
Looking Beyond the Clinic: Putting Patients at the Center of Holistic Care in Transthyreti ...
Enhancing understanding of this life-threatening disease and ensuring that care reflects the realities of those living with it are vital goals shared across the
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September 6, 2023
First Consensus Recommendations for Holistic Care of People Living With Hereditary ATTR Am ...
The Amyloidosis Alliance has published the first-ever consensus recommendations for patient- and family-centred holistic care in ATTRv.
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October 24, 2022
“Be the Link!” Learn from patients on World Amyloidosis Day
No one knows this better than Jean-Christophe Fidalgo, President of the Amyloidosis Alliance, who has been living with hATTR amyloidosis for more than 20 years.
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September 6, 2021
Co-Creating with Patients, for Patients: Addressing Unmet Needs in Conversations about AT ...
Collaborating with patient organizations and patients is an essential part of our efforts to support people living with a complex rare disease like...
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