Acute Hepatic Porphyria
April 2, 2022
The Making of Two of Me: Living with Porphyria
Cynthia Lowen, Emmy-nominated filmmaker, talks about the making of Two of Me: Living with Porphyria.
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March 12, 2021
Decades of Pain and Uncertainty: Donna’s AHP Story
For more than 20 years, Donna navigated debilitating pain, mysterious symptoms and uncertainty about her health. Today, with a better handle on her wellbeing...
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September 14, 2020
Navigating AHP and Pain During a Pandemic
As the COVID-19 pandemic continues to have a significant impact on people and communities around the world, it poses unique challenges for people living with...
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May 6, 2020
Navigating the Winding Road to Drug Approvals
Learn about the winding road and key members involved in getting a new drug approved.
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February 25, 2020
Advocacy for Impact Grants: Updates from the Field
Learn about how patient organizations who received 2018-2019 Alnylam Advocacy for Impact Grants have been putting those funds to work.
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September 14, 2019
"Beyond the Visible" Art Exhibit Raises Awareness of Acute Hepatic Porphyria in Italy
This past weekend, "Beyond the Visible," a first of its kind exhibition of original works of art created by a group of graphic design and art students...
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June 19, 2018
Guest Post: The Heroes Among Us
For many of us, it’s unimaginable to think of a daily life filled with intractable pain. It’s also hard to imagine caring for someone in pain of that...
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