Rare Disease Day

February 28, 2023 The Importance of Self-Advocacy: Supporting Patients and Caregivers in Their Rare Disease ... Rare Disease Day unites the community to spread awareness and support the millions of people worldwide living with with a rare disease. Read More ›
February 28, 2022 Supporting Health Equity for All Through Leadership, Action and Partnership "Health equity" means that everyone has a fair and just opportunity to live the healthiest life possible, regardless of who they are, where they live or how... Read More ›
February 23, 2021 Rare Disease Day 2021: Rare Is Many. Rare Is Strong. Rare Is Proud. While some aspects of living with a rare disease are similar, there is no singular shared experience. There is, however, a common sentiment among those... Read More ›
February 28, 2018 A Note from Nicole Boice of Global Genes: Hope Is on the Horizon On this Rare Disease Day—and as is the case each year on February 28—I’m reminded of why I founded Global Genes nearly a decade ago. At that time, I was just... Read More ›
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